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PACE (Patient and Clinician Engagement) is a step in the SMC assessment process for medicines for end of life or very rare conditions (called orphan or ultra orphan medicines). It gives patient groups and clinicians a stronger voice in SMC decision making when these kinds of medicines are being considered. The PACE meeting brings together patient group representatives and clinical experts to discuss the severity of the condition and how it impacts on a patient’s quality of life and on a patient’s family or carers.

Find out more about taking part in an SMC PACE meeting as a Patient Group Partner