Patient Group Partners
The SMC works in partnership with patient groups from around the country to capture patient and carer experiences. We accept submissions from all registered patient groups, from small local support groups to large national voluntary organisations. Patient groups are often looking to speak to patients and carers about new medicines which may help them. You can find details of most patient groups by using the search directory on www.patient.co.uk/directory.
To take part in the SMC review process patient groups must first register as an SMC Patient Group Partner. This is very straightforward to do. You complete a simple registration form, providing details about your patient group. This is a one off process and the details can be updated as required. We will contact you each year to request an update. You can either register at the same time as you send your first submission or in advance.
If you need any help completing the form please don't hesitate to get in touch with our Public Involvement team via email at hcis.SMCPublicInvolvement@nhs.net.
The following patient groups have worked in partnership with SMC since our new registration system launched in April 2015. This list is continually growing, with new groups registering to become Patient Group Partners each time a medicine which is of interest to the patient group they represent is submitted to SMC.
The Chronic Myeloid Leukaemia Support Group
The Cystinosis Foundation UK
Edinburgh & Lothian Prostate Cancer Support Group
The HS Trust
National Lung Cancer Forum for Nurses (NLCFN)
ORT Recovery and ME National Network
Perth & Kinross ADHD Support Group
Scottish Lung Cancer Nurses Forum
Thyroid Cancer Alliance