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Capturing the patient and carer voice

Understanding the experiences of patients, their families and carers is a key element in our decision making process.

It is important for SMC members to fully understand how a new medicine impacts the quality of life of patients and carers. This enables them to make a fully informed decision on whether or not to recommend a new medicine. 

Patients, members of their families and carers can provide unique knowledge about what it's like to live with a condition. They can explain advantages and disadvantages of medicines that may not be available in the published literature or quality of life measures. 

We work in partnership with patient groups to gather this information through our patient group submissions.

You can find out more about how patient group submissions work by watching our short film, Preparing a submission for SMC: patient group experience .

For more information on patient group submissions and how your group can get involved with our work, please contact our Public Involvement team via